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| Who We Are |
The Office of Developmental Primary
Care is a new program within the Department of
Family and Community Medicine at the University of
California, San Francisco. We are dedicated to
improving health outcomes for people with developmental
disabilities across the lifespan. The greatest
area of need is for adolescents and adults. We are
partnering with other stakeholders to develop resources
for clinical service, advocacy, research and
training.
Clarissa Kripke, MD, FAAFP
Director
Gerri Collins-Bride, NP, MS, ANP
Director of Training & Clinical Education
Patricia Mejia
Program Coordinator
Tel: (415)
476-4641 | |
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| Clinical Service |
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- In collaboration with The Arc of San Francisco, the Office of Developmental Primary Care has been awarded funding by the UCSF University Community Partnerships Council to bring a Health Advocate to the UCSF Family Health Center at San Francisco General Hospital. The Health Advocate will assist in clinician training and will provide patient support for people with developmental disabilities.
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| Advocacy |
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- Dr.
Clarissa Kripke has been appointed
Chair
of the Chancellor's Advisory Committee on
Disability Issues.
The charge of the advisory committee is to identify
issues on campus affecting individuals with
disabilities; to evaluate existing policies,
procedures, and/or programs in light of those issues;
and to recommend to the Chancellor changes to increase
accessibility among members of the campus
community.
- A number
of Office of Developmental Primary Care Collaborators
have been named to the San
Francisco/Marin Autism Regional Task
Force to
support and assist in the work of the Senate
Select Committee on Autism and Related
Disorders: Dr.
Robert Hendren, Director of Child and Adolescent
Psychiatry and Vice Chair, Alan Fox, Chief Operating
Officer, The Arc of San Francisco, Jim Shorter,
Executive Director, Golden Gate Regional Center, and
Dr. Clarissa Kripke.
- Mary Lou
Breslin and Disability
Rights Education and Defense Fund
(DREDF), met
with the Office of Developmental Primary Care when
they drafted "The
Current State of Health Care for People with
Disabilities",
a key
report for the National
Council on Disability.
Click
here to view the report.
- Santi
Bahgat, MD, Founder and President of
Physician-Parent
Caregivers, Inc.,
released a white paper titled, "Enhancing
Health Care Transitions for Youth and Young Adults
with Living with Chronic Medical Conditions and
Disabilities: Suggestions for Reform."
Dr. Clarissa Kripke contributed expertise in the area
of developmental disabilities. The
paper is available here.
- The
William R. Hearst Foundation has
awarded
The Arc of San Francisco a
$75,000 grant to support the first of a 3-5 year
project to reform the health care delivery system for
transition age youth and adults with developmental
disabilities. In partnership with the Office of
Developmental Primary Care, the Golden
Gate
Regional Center, and
Health
Plan of San Mateo, The
Arc of San Francisco is coordinating the effort to
gather data, train health professionals, open a
specialty clinic and make the public policy changes
necessary to meet the health care needs of people with
DD.
- Collaborators
met with representatives of the CA
Department of Health Care Services to
educate them on the unique needs of transition age
youth and adults with developmental disabilities.
We will meet again to propose an organized system
of care for this population in California.
Present were: Alan Fox, Jim Shorter, Clarissa Kripke
and Dr. Mary Giammona, Medical Director of Health
Plan of San
Mateo.
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| Research |
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·
Robert
Hendren, DO, an expert in autism and former Director of
the M.I.N.D Institute has joined the
UCSF
Department of Psychiatry
as Director of Child and Adolescent Psychiatry and
Vice Chair. He leads the Bay
Area Autism Consortium
to enhance cross-institutional collaboration on
research.
·
The Association
of University Centers on Disability
and the Centers
for Disease Control
convened a meeting to determine appropriate methods for
conducting population surveillance on the health of
persons with intellectual disabilities in the United
States. Dr. Clarissa Kripke participated. A
follow-up meeting in Washington, DC is planned in
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| Training |
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· The Office of Developmental Primary Care has provided 22 trainings to over 780 participants, including faculty, residents, students, self-advocates, and caregivers.
· Trainees have gained clinical experience through partnerships with 16 clinical training sites at UCSF and in the community.
· Sandra Grijalva, Director of Wellness Services at The Arc of San Francisco has taken the lead in developing community-based training experiences with adults with developmental disabilities for third-year medical and PRIME-US students. Wellness Services is an innovative program to provide health advocacy for patients with developmental disabilities who need support to access health care.
· The first session of FCM140.16: Caring for Adolescents & Adults with Developmental Disabilities was offered this summer session 2009. During this one month rotation, a fourth year medical student had the opportunity to experience the full breadth of community-based Developmental Medicine.
· Dr. Mary Coleman presented a talk on developmental screening to the faculty practice of the UCSF Department of Family and Community Medicine. This lead to the implementation of the Ages and Stages Developmental Screening tool at this key teaching site.
· Melanie Callen, MEd, Joanne Donsky, LCSW, Dr. Shannon Thyne, and Dr. Teresa Villela have integrated training in developmental screening into the core Family Medicine residency curriculum. In addition, they have arranged for Family Medicine residents to get an experience at the developmental Pediatric Screening Clinic and Multidisciplinary Assessment Clinic (MDAC).
· Welcome to Dr. Neil Rojas, Developmental Pediatrician, who has joined the team in the UCSF Department of Pediatrics. He is developing new curriculum in developmental and behavioral pediatrics into the curriculum for Pediatric residents and students.
We are very excited to have partnered with a number of students who are committed to serving patients with DD. Below are highlights of some of our student lead projects.
· The Disability Rights Interest Group (DRIG) has had its first event, a presentation by Heather Bennett, MS4, on physicians with disabilities. The DRIG is an interdisciplinary student organization that aims to provide future health professionals with training, skills, and opportunities to work with people with disabilities in their future career paths. The group is dedicated to advancing the health of people with DD through research, social and political activities, and culturally sensitive medical training.
· Heather Fels, MS4, mapped the current medical school curriculum to identify where content in DD is currently being taught.
· Lien Le, MS2, developed a proposal to partner with Autism Social Connection for a video project which will focus on the health care transition needs of youth with autism.
· Heather Fels, MS4, as part of her Health Professions Education Pathways project has drafted a Problem Based Learning Case (PBL) and met with course directors to identify opportunities to incorporate curriculum on developmental medicine.
· Lucy Chen, Doctor of Pharmacy Candidate 2012, one of the coordinators for the Caring of the Underserved elective has invited the Office of Developmental Primary Care to present a training on the needs of individuals with developmental disabilities.
· As part of her project as a Curriculum Ambassador, Carol Becerra, MS2, developed a comprehensive web-based module on Down Syndrome for the Life Cycle block in the core curriculum for second-year medical students. For the first time, this module includes care of adults.
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| Upcoming Events |
February 17, 2010 from 3-5pm
The Community Engagement Program of the UCSF Clinical Translational Science Institute will facilitate a consultation to discuss UCSF's interest and capacity to conduct research on health services and health policies regarding adolescents and adults with developmental disabilities. The hope is the meeting will be a start to greater collaboration among researchers whose interests overlap in this field.
March 11-12, 2010
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The Office of Developmental Primary Care is a project of
the Department of the Family and
Community Medicine
at the University of California,
San Francisco.
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